Wouldn't it be amazing to see life through someone else's eyes? Well, I hope I can give you an insight to what it is that makes me tick. Before, I can be my funny and sometimes embarrassing self, I have to be serious and seriously tell my story.
I have been told that if the world was to put their problems all in a pile and see how much other people are truly hurting and suffering we would gladly accept our difficulties and face them with dignity and persistence, knowing we are lucky just to be alive and healthy. This is true and I know that it's not right to judge anyone when I have no idea what they are facing or going through. I just wish the people that I thought were close to me could understand this simple heuristic.
I am nothing compared to who I was in High School. I will be 21 in less than 2 weeks and am more mature than people three or four years older than myself. I make mistakes quite often, but, I know how to fix them and get the help or advice I need when I need it. We are all human and you are not living life to the fullest extent unless you make mistakes and have a past to reflect upon. One piece of advice: really listen to your parents because 100% of the time my Mom was absolutely right about someone or something. It's really scary but true!
I do not want sympathy, but hopefully, I can provide some insight and understanding for what I have been going through so others can understand how and why I do not do as much or go out as much as I use to.
So here comes the heavy stuff, the things that I have been facing and what has been dictating my life for the past year. After months of tests and being stuck with needles sometimes more than 15 times in one week, I finally went to this gastrointestinal genius of a doctor, Dr. Mathias. He first listened to my insides with his stethoscope and then made me listen to them and they sounded like rice crispies that just had milk poured over them, popping and crackling. This meant that something was for sure going on in my gastrointestinal tract. He ran a test on me and found that I have a neuromuscular disease in my digestion tract, where my intestinal tract and colon has seizures and causes severe, almost stab like pains. Because I had this disease and how severe it was, Dr. Mathias was absolutely sure that I would have to go see another doctor, Dr. Mangel, an infertility specialist. I would soon be diagnosed with endometriosis, which is a female disorder where cells from the lining of the womb grow in different areas of the body and is affected by insulin and glucose absorption. Almost all women have some endometriosis in their system but it does not react or cause symptoms and pain such as mine did. Between these two diseases I was affected everyday in the way I felt, slept, ate and perceived myself. It was depressing and took me off my tough girl petalstool after taking multiple stabs at my dignity. I had surgery in December to remove my endometriosis and it went well but still to this day I encounter problems and bumps along the road to recovery.
I am on a strict diet of what I can and cannot eat. I have not had a medium rare steak since last September and that is my all time favorite meal. It's almost hard to believe that after all this time I do not even think about red meat when I start considering what I will cook for dinner or even lunch. I take medicine 4 times a day with each meal and before I go to bed to try to subside the seizures that still persist.
It's not easy to admit you were your own worst enemy and part of the reason I had these diseases was because of what I put into my body. How we rise after falling is what truly dictates one's true self and intentions in life.
My hope is that I can conquer and control these diseases with a healthy lifestyle full of exercise and healthy eating. I wish none of these things upon another and pray for the guidance needed to succeed at the journey ahead of me.
SSC

Hello
ReplyDeleteI understand you are busy so I shall keep this brief. My wife has been suffering from endo for 15 years now. By reading your blog, It was like telling my wife's journey with this horrible disease as well. We just got back from Dr. Mathias office in houston about 1 week ago, and he put her on the endo diet u mentioned, also, he put her on clonezepam (seizure medication) which I'm terrified she will get dependent on, peri-actin drops which she takes only at night but only 1/2 the dosage because it gets her very drowsy and sleepy, non-metal reactive pharmaceutical grade fish oil, 2 tablespoons of olive oil and her daily dosage of minerals by new vision for the reduction of her bowel spasms. Are these the medications/minerals your taking? How
Have you been fairing with them if so? How are your pain levels? Dr. Mathias wants my wife on this endo diet for 8weeks under all these medications, but I'm already seeing her spirit deteriorate and it makes me hurt to see her going through this. After the 8 week treatment, dr. Mathias will send her back to Dr. Mangal for his invasive laparoscopic procedure, much different than the lap procedures here in San Antonio Texas where we reside. Apparently, Dr. Mangals procedure will keep my wife pain free for up to 3-5 years before it grows back. I'm still hesitant because I've seen it grow back so quickly. I really do hope to hear from you as it is always comforting to know the support for women with endo is out there. Although there is no cure, you, among my wife and others continue to fight and I admire your strength. We have talked about children but financially, we are not ready, then again, where are we ever financially ready in this economy?
Sincerely,
Yesenia and Alex Macias
Hope to hear from u soon.
My email is Funnies16@yahoo.com